Now in the consolidation phase of treatment, today's clinic visit was slated to be a short one. Short is a very subjective term these days--I currently define it as less than 9 hours (last week's clinic visit).
A short visit was not to be had today. In fact, we set a new PR (personal record) of 10 hours. It seemed as though one thing after the other happened in a way that would challenge our nerves, patience, and basic sanity.
Paige required another red blood cell transfusion this week, as her hemoglobin count was lower today than last Thursday. Near the end of the first of two units, she began showing signs of an allergic reaction--hives on her face, stomach, and back, as well as a bit of facial swelling. We were very thankful she didn't experience trouble breathing, which is much more serious than a skin reaction. A strong dose of Benadryl did the trick to get her back on track. The spinal tap, chemotherapy, and second unit of blood were administered once Paige was stable enough to tolerate everything. Ten hours after arrival, we headed home.
There was quite a bit of waiting involved...waiting on labs to be returned, blood to be prepared, and medications to take effect--to name a few. Paige continues to be a such a rock--calm in the storm of today's uncertainties. She didn't complain when told we had to head up to the Medical Center two days next week rather than one. Like one of Paige's doctors told her today, treatments have a "Hurry Up and Wait" component. Our beautiful girl will be healed--we can certainly put in the time when needed!
By definition, a journey can be a long and difficult process. Maybe that's what makes it so rewarding at the end!
Wait for the Lord; be strong, and let your heart take courage; wait for the Lord! Psalm 27:14
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